The last 48 hours have been tough. And let's be honest. Anytime someone faces something medical, what's the first thing you do when you get home? Google. :) We were in such shock at the doctor's office that I feel like we left with a million questions. I found this one website that has answered a lot: Little Four Eyes. To be honest, at first I couldn't even look at it. I hated the name. I understood that it was a place for parents who have infants and toddlers with vision disorders, but the name made me sick. After a few hours passed, I braved the site. I am so glad I did. It answered lots of questions. If you have any, you could probably find answers there too. I've had a lot of people comment with "if" Grant has to wear glasses. There is no "if" involved. It will happen immediately after his second surgery in two weeks. And these aren't your typical glasses. They are extremely thick because they are replacing the eyes lenses that are being removed from surgery. I know I'm babbling a lot, but honestly we didn't know babies could be born with cataracts nor did we know babies wore glasses like these until yesterday (much less did we ever imagine our son would be facing this). Here is a blog I found through the above sight. It has helped me so much. They are just a few months ahead of us, and it will explain the road we will be going down. And believe me we have felt all the emotions they have over the last 2 days. The hardest part for me is hearing the words "disability" and "handicap". In the words of our pediatrician, Grant will have a learning ABILITY. He will just have to learn a few things differently. As far as we know, his mind is sharp! He just can't see. Please continue to pray for our precious son.
I'm going to leave you today with a video of Jack from the above blog. He is such a cutie, and it can show you a quick overview of the process. And yes, that is what Grant's glasses will look like.
3 comments:
I'm so glad you found Jack's blog. I've followed many stories of babies with congenital cataracts and I'm amazed at how wonderfully they do, once they get past the surgeries. I haven't read much of your blog, but from what I've seen, it's clear that your Grant is in great hands with parents that care so deeply.
Best to you and your family,
Ann from little four eyes (I'm so sorry the name bothered you, I do understand why, but I hope you know it comes from a place of great affection for our little ones in glasses)
Grant is going to do great things. He is going to be just as adorable with glasses, if not more. Always remember, this is no DIS- in ability, only ABILITY. I love the saying "do not dis my ability." We live by that around here.
I love you.
Hi there! I am so glad to hear that you found our blog. That is EXACTLY why I wrote it...you guys are at the toughest point of the journey, but it does get better. Please email me at eyelovejack@gmail.com if I can be of ANY help or answer any questions that you couldn't find on the blog. We found another family who had been through the same thing and it was scary bue helpful to talk to them!
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